ALS Ohana
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    • Home
    • About Us
    • Our Board
    • Get Involved
    • Contact Us
    • Donate
ALS Ohana
  • Home
  • About Us
  • Our Board
  • Get Involved
  • Contact Us
  • Donate

Who We Are

Our Mission

Our Mission is to enhance the quality of life for those individuals in Hawaii who are affected by ALS by providing compassionate, practical support. This includes the person with ALS as well as family and friends.


ALS Ohana is a part of ALS Network.

What is ALS?

Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.


Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

Learn More

Newly diagnosed?

 Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions.


 Get connected with the ALS Network’s team of professional Care Managers, here to provide expert advice and assistance for people living with ALS, free of charge. The office is open Monday through Friday.


 Please fill out this new client intake form (also available in Spanish). For any questions, contact the ALS Network: 1-866-750-2572, careservices@alsnetwork.org.

Get Connected Today

oUR seRVICES IN hAWAII

Connect, Support, Chat Groups

 Anyone, regardless of location, is welcome to join the ALS Network’s topic-specific groups! Connection groups provide opportunities for people living with ALS and their loved ones to share and learn with the community.

Join Today

Community Outreach Events

 Each year, we join the ALS community in various ways to create help and hope for families impacted by ALS today, and for those who will be diagnosed in the future.

Get Involved

Equipment Loan Program

Equipment Loan Program

 In partnership with the ALS Network, we provide an equipment loan program (ELP) free-of-charge to families in need of necessary durable medical equipment (DME) and complex rehab technologies (CRT). 

Get Connected

Local Care Management

Local Care Management

Equipment Loan Program

 The ALS Network’s Care Management and Community Outreach staff are available to our ALS ohana throughout Hawaii. They provide vital resources and support for navigating the challenges of living with ALS, and offer essential assistance in the event of emergencies and natural disasters.

Meet the Team

Advocacy Initiatives

Local Care Management

Our Clinical Partners

 ALS doesn’t stop, and neither do we. To grow our impact and fuel our advocacy efforts, we need your support. As an ALS Advocate, you can help change the laws and policies that affect thousands of people with ALS and their families. 

Become an Advocate

Our Clinical Partners

Local Care Management

Our Clinical Partners

 We collaborate with some of the best physicians and clinics across the nation to ensure that people living with ALS have access to state-of-the art, specialized care. These specialized treatment centers provide compassionate care in a supportive, family-oriented atmosphere. 

Find Your CLinic

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