
Our Mission is to enhance the quality of life for those individuals in Hawaii who are affected by ALS by providing compassionate, practical support. This includes the person with ALS as well as family and friends.
ALS Ohana is a part of ALS Network.
Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.
Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions.
Get connected with the ALS Network’s team of professional Care Managers, here to provide expert advice and assistance for people living with ALS, free of charge. The office is open Monday through Friday.
Please fill out this new client intake form (also available in Spanish). For any questions, contact the ALS Network: 1-866-750-2572, careservices@alsnetwork.org.

Anyone, regardless of location, is welcome to join the ALS Network’s topic-specific groups! Connection groups provide opportunities for people living with ALS and their loved ones to share and learn with the community.

Each year, we join the ALS community in various ways to create help and hope for families impacted by ALS today, and for those who will be diagnosed in the future.

In partnership with the ALS Network, we provide an equipment loan program (ELP) free-of-charge to families in need of necessary durable medical equipment (DME) and complex rehab technologies (CRT).

The ALS Network’s Care Management and Community Outreach staff are available to our ALS ohana throughout Hawaii. They provide vital resources and support for navigating the challenges of living with ALS, and offer essential assistance in the event of emergencies and natural disasters.

ALS doesn’t stop, and neither do we. To grow our impact and fuel our advocacy efforts, we need your support. As an ALS Advocate, you can help change the laws and policies that affect thousands of people with ALS and their families.

We collaborate with some of the best physicians and clinics across the nation to ensure that people living with ALS have access to state-of-the art, specialized care. These specialized treatment centers provide compassionate care in a supportive, family-oriented atmosphere.
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